Simon and Samantha Daff were in for a rude shock when they learnt that their newborn son Jackson suffered from metachromatic leukodystrophy, a rare condition. Their eldest daughter Mackenzie, 4, was diagnosed with the same diseases just weeks before. “We went from not sleeping at all to getting the news — I haven’t slept as … Continue reading Are rare diseases really rare in Australia?
All of us have heard about Lewis Carroll’s fictional work Alice in Wonderland. In the book, Alice goes through a series of hallucinating experiences when she falls into a deep hole, while following a rabbit. These included illusions like being just ten inches tall and acquiring different sizes after eating a cake. What Alice experienced … Continue reading Alice in Wonderland Syndrome